How to start Hospice Care?
Typically a family member serves as the primary caregiver and when appropriate helps make decisions for the terminally ill individual. The Loving Hands Hospice Team develops a care plan that meets each patients needs for pain management and control of symptoms. A Registered Nurse with Hospice Experience will continually assess the ill person’s condition and keep in close touch with the patients treating physician and the hospice medical director about any symptoms of pain, nausea, depression, or any other medical conditions that need treatment. Often the ill person’s symptoms can be improved significantly even though the basic illness cannot be cured.
Who Is Eligible?
Patients over the age of 18, regardless of race, religion, or illness. A common misconception about hospice is that it is a service provided only to cancer patients. The fact is that we provide care to patients with any end stage diagnosis. These may include, but are not limited to: Cancer, Heart Disease, Kidney Disease, Liver Disease, Lung Disease, Stroke and/or Coma, AIDS, Neurological Diseases (Alzheimer's, Parkinson's, Dementia, etc.).
10 Hospice Myths
1. Hospice is a place.
Hospice care takes place wherever the need exists, usually the patient's home. About 70 percent of hospice care takes place where the patient lives.
2. Hospice is only for old people.
Although the majority of hospice patients are older, hospices serve patients of all ages. Many hospices offer clinical staff with expertise in pediatric hospice care. Loving Hands Hospice provides hospice services for patients over the age of 18.
3. Hospice is only for people with cancer.
Most hospice patients have diagnoses other than cancer. In urban areas, hospices serve a large number of HIV/AIDS patients. Increasingly, hospices are also serving families coping with the end-stage chronic diseases, like emphysema, Alzheimer's, cardiovascular, neuromuscular diseases, and many others.
4. Hospice is only for dying people.
As a family-centered concept of care, hospice focuses as much on the grieving family as on the dying patient. Most hospices make their grief services available to the community at large, serving schools, churches and the workplace.
5. Hospice can only help when family members are available to provide care.
Recognizing that terminally ill people may live alone, or with family members unable to provide care, many hospices coordinate community resources to make home care possible. Or they help to find an alternative location where the patient can safely receive care.
6. Hospice is for people who don't need a high level of care.
Hospice is serious medicine. Most hospices, including Loving Hands Hospice, are Medicare-certified, requiring that they employ experienced medical and nursing personnel with skills in symptom control. Hospices offer advanced palliative care, using technologies to prevent or alleviate distressing symptoms.
7. Hospice is only for people who can accept death.
While those affected by terminal illness struggle to come to terms with death, hospices gently help them find their way at their own speed. Many hospices welcome inquiries from families who are unsure about their needs and preferences. Hospice staff are readily available to discuss all options and to facilitate family decisions.
8. Hospice care is expensive.
Most people who use hospice are over 65 and are entitled to the Medicare Hospice Benefit. This benefit covers virtually all hospice services and requires little, if any, out-of-pocket costs. This means that there are no financial burdens incurred by the family, in sharp contrast to the huge financial expenses at the end of life which may be incurred when hospice is not used.
9. Hospice is not covered by managed care.
While managed care organizations are not required to include hospice coverage, Medicare beneficiaries can use their Medicare hospice benefit anytime, anywhere they choose. They are not locked into the end-of-life services offered or not offered by the managed care organizations. On the other hand, those under 65 are confined to the managed care orginizations services, but most provide at least some coverage for hospice.
10. Hospice is for when there is no hope.
When death is in sight, there are two options: submit without hope or live life as fully as ever until the end. The gift of hospice is its capacity to help families see how much can be shared at the end of life through personal and spiritual connections often left behind. It is no wonder that many family members can look back upon their hospice experience with gratitude, and with the knowledge that everything possible was done towards a peaceful death.